The EU Civil Society Forum on HIV, TB and Viral Hepatitis is a body originally supported by the European Commission DG SANTE to facilitate the involvement of civil society in policy development and programme implementation. It seeks to provide a platform for mutual learning and strategic thinking to improve policies and their implementation; to strengthen advocacy for the rights of key communities living or affected by these infections; to contribute to the empowerment of community groups.
EuroTEST is a pan-European multi-stakeholder initiative that provides a platform for information exchange and activities to improve early diagnosis and care of HIV, viral hepatitis, sexually transmitted infections and tuberculosis. It aims to inform policy processes, share knowledge and improve the evidence base around important issues of earlier testing and care.
HIV Outcomes aims to address the needs generated by increased life expectancy, by looking to improve health outcomes and quality of life of people living with HIV in the long-term. It does so by sharing evidence-based best practices and innovative approaches to care, while implementing policy and clinical changes in European countries.
The Nobody Left Outside (NLO) initiative is a collective of organisations representing people in some of the most marginalised communities in Europe, who are underserved with respect to healthcare. These communities include homeless people, LGTBI people, people who use drugs, prisoners, sex workers and undocumented migrants.
The NLO initiative provides a European-level platform for organisations to collaborate to identify shared challenges, exchange lessons and good practice, seek innovative solutions, and speak with a unified voice to offer guidance to improve healthcare access for the communities of people they represent – on the basis that nobody should be left outside
The Civil Society Forum on Drugs (CSFD) is an expert group of the European Commission that was created in 2007 on the basis of the Commission Green Paper on the role of civil society in drugs policy in the EU. Its purpose is to provide a broad platform for a structured dialogue between the Commission and the European civil society which supports drug policy formulation and implementation through practical advice.
The International Cohort Consortium of Infectious Disease (RESPOND) was formed in 2017 as a prospective, multi-cohort collaboration for the study of infectious diseases, with a special focus on people living with HIV. RESPOND was founded upon the groundwork laid by outstanding European HIV cohort collaborations such as EuroSIDA, the Collaboration of Observational HIV Epidemiological Research Europe (COHERE) and Data Collection on Adverse events of Anti-HIV Drugs (D:A:D) studies, and utilizes a similar, well-established infrastructure.
The PrEP in Europe initiative is a partnership of eight HIV prevention and policy organisations that work in Europe, set up to fill a gap in campaigning and policy around HIV pre-exposure prophylaxis (PrEP) in Europe.
This coalition of patients, community actors, clinicians and researchers has come together to mobilise European policymakers for eliminating viral hepatitis throughout the European neighbourhood, improving both patient outcomes and health systems’ sustainability by means of a new Declaration, and adoption of an EU Policy Framework for Communicable Diseases.
The European Alliance for Responsible R&D and Affordable Medicines is a civil society coalition gathering consumer, patient and public health organisations calling for the creation of an R&D system that is driven by public health needs and delivers medicines that are universally accessible and affordable.
Building on the EmERGE project, a not-for-profit company, EmH Ltd. was created to bring forward the commercialisation and further development of the platform. The EmERGE project has developed a mHealth platform to enable self-management of people living with stable HIV. The platform provides users a mobile device application which interfaces securely with relevant medical data and facilitates remote access to key healthcare providers. The platform development has applied a rigorous co-design approach to ensure patient and clinician input to the solution. EmH is set to sustain co-design with the support of EATG.
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