Why?
While important progress has been made in the global response to HIV/AIDS in Europe, the WHO European region – and in particular, Eastern Europe – now has the fastest growing HIV epidemic globally. At the same time, people living with HIV are living longer, it has created new challenges relating to the prevention, treatment, and management of comorbidities (co-existing medical conditions) as well as health-related quality of life. In an era when ageing populations and health system sustainability are central challenges for all European countries, HIV Outcomes also aims to promote innovative approaches to improve long-term health and quality of care in a sustainable manner, whilst ensuring patient-centred healthcare delivery. Governments and health systems must respond to the fact that people are living longer and ensure that they remain in good health as they grow older and can lead successful, productive, and rewarding lives.
What?
HIV Outcomes aims to address the needs generated by increased life expectancy, by looking to improve health outcomes and quality of life of people living with HIV in the long-term. It does so by sharing evidence-based best practices and innovative approaches to care, while implementing policy and clinical changes in European countries.
With whom?
HIV Outcomes brings together patient organisations, medical professionals, academics, public institutions, and the private sector to mobilise the policy and clinical agenda to ensure that long-term health and wellbeing of people living with HIV is addressed beyond viral suppression. You can find the list of members here.
How?
In 2017, HIV Outcomes issued recommendations in the European Parliament on the long-term health, well-being and chronic care of people living with HIV with cross-party support. It has issued a compendium of best practices. In 2018, and call to action to European and national policy makers. In 2019, the initiative collaborates with actors at national level to facilitate local multi-stakeholder dialogue on the topic. In 2020, the Initiative will increase its focus on mental health and stigma discrimination. In 2020, it organized organised a webinar on the Health Policy Platform to discuss the key learnings from The Lancet HIV Series on HIV Outcomes: Beyond Viral Suppression, and explore their policy implications for the EU.
For what outcome?
The initiative seeks to help achieve long-term health and well-being of all people living with HIV across Europe – and thereby contribute to the sustainability of European healthcare systems.
| EATG contact person(s): | Magdalena Ankiersztejn-Bartczak (member representing EATG) |
| Duration of the initiative: | Started in 2017 – ongoing |
| Secretariat: | Foresight International Policy and Regulatory Advisers (FIPRA) |
| Main Partner(s): | Members of the Steering Group: AIDS Action Europe, AFEW International, East Europe & Central Asia Union of PLWH (ECUO), European AIDS Treatment Group (EATG), Homerton University Hospital NHS Foundation Trust, Positive Voice (Greek association for PLHIV), ISGlobal – Hospital Clinic – University of Barcelona, AIDES, Hannover Medical School, University of Milan, Gilead Sciences, ViiV Healthcare |
| Main Funding Sources: | Gilead Sciences Europe Ltd, ViiV Healthcare Europe Ltd |
| Links: | https://hivoutcomes.eu/ |
Get involved
Are you living with HIV/AIDS? Are you part of a community affected by HIV/AIDS and co-infections? Do you work or volunteer in the field? Are you motivated by our cause and interested to support our work?
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