By Gus Cairns
I just wanted to honour the unacknowledged lives and forgotten deaths of the people who died in places like Kinshasa and Rakai long before New Yorkers started getting it. But also to expose my own ambiguity and discomfort with the label ‘Long Term Survivor’ of HIV. My life would have been very different, and possibly in some ways better, if AIDS had not happened. I celebrate the fact that that experience is unlikely to happen again for people diagnosed in the last two decades. It’s wonderful. But survival, as well as being wonderful, has a price.
By Lisa Power
Community Advisory Boards (CABs) are a growing feature of patient engagement strategies to inform and improve drug development within a range of medical conditions. The creation of these ongoing expert patient consultative panels has made substantial contributions to improved drug development but more systematic evaluation of the evidence is needed. While many CABs are national, they can also work across Europe and the longest-running of these is the European AIDS Treatment Group’s CAB.
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