EATG did research into the use of patient-reported outcome measures (PROMs) for the development of new HIV medicines. Led by the community, the work comprised of a literature review, a survey with people living with HIV taking treatment and stakeholder interviews. The purpose of the work is to describe the current use of PROMs in HIV research and development as well as to inform an advocacy agenda to guide the use and development of PROMs, highlighting the role of communities living with or affected by HIV. It provides a concrete set of recommendations for people living with HIV, pharmaceutical companies, researchers/clinicians and regulatory bodies/HTAs.
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