The PROMise Community Activist Toolbox contains materials related to Patient Reported Outcome Measures (PROMs) in HIV Research & Development (R&D). It can be used as a starting point for creating knowledge around basic literacy on PROMs in the HIV Research and Development context.
This toolbox is primarily intended for community advocates and people living with HIV advocating for more community involvement in the development of PROMs and for all of the actors (patient communities in other disease areas, industry, academia, research institution, regulatory agencies and health policy decision-makers at European and national levels, Health Technology Assessment bodies) interested in being involved in the PROMs R&D process.
The PROMise project aims to increase awareness and visibility on the relevance of adequate PROMs for HIV and their development. EATG aims to ensure that community advocates have knowledge on the different PROMs that are being used in HIV R&D and are able to represent their interests towards the relevant stakeholders in the field so that community representatives are involved in all stages of the development of new HIV-specific PROMs.
Are you living with HIV/AIDS? Are you part of a community affected by HIV/AIDS and co-infections? Do you work or volunteer in the field? Are you motivated by our cause and interested to support our work?
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