Since 2020, the European AIDS Treatment Group (EATG) has commissioned research under the scope of the PROMise project to analyse the role of patient-reported outcomes (PROMs) in HIV research and development (R&D) and to explore potential contributions by community-based organisations. The results and recommendations from the research can be read here.
As a follow up to the EACS meeting and the EATG PROMise focus groups with key stakeholders, EATG is implementing the recommended action to hold a stakeholder workshop that explores a methodology for discussion and consensus on various aspects of PROMs in HIV R&D.
The face-to-face stakeholder workshop will take place on 17 June (10:00-15:00 CET) in Brussels, Belgium. The workshop aims to:
|10:00||Welcome and introductions||Pieter Vanholder, Executive Director, EATG|
|10:10||Background update on EATG’s work on PROMs in HIV R&D||Kevin Moody|
|10:20||Desirable attributes of PROMs to address new products.||Caroline Sabin|
|What’s in the pipeline?||Marc van der Valk|
|11:35||Regulatory participation||Facilitator TBC|
|13:15||Introduction to Delphi and other consensus-building methodologies||Kevin Moody|
|13:35||Discussion on feasibility and desirability of adopting a methodology for this work||Brian West|
|14:15||Agreement on timelines, people to invite to participate, logistics, etc.||EATG office|
|14:45||Summary and closure||Pieter Vanholder|
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