Since 2020, the European AIDS Treatment Group (EATG) has commissioned research under the scope of the PROMise project to analyse the role of patient-reported outcomes (PROMs) in HIV research and development (R&D) and to explore potential contributions by community-based organisations. The results and recommendations from the research can be read here.
As a follow up to the EACS meeting and the EATG PROMise focus groups with key stakeholders, EATG is implementing the recommended action to hold a stakeholder workshop that explores a methodology for discussion and consensus on various aspects of PROMs in HIV R&D.
The face-to-face stakeholder workshop will take place on 17 June (10:00-15:00 CET) in Brussels, Belgium. The workshop aims to:
Time | Topic | People |
10:00 | Welcome and introductions | Pieter Vanholder, Executive Director, EATG |
10:10 | Background update on EATG’s work on PROMs in HIV R&D | Kevin Moody |
10:20 | Desirable attributes of PROMs to address new products. | Caroline Sabin |
What’s in the pipeline? | Marc van der Valk | |
11:20 | Coffee Break | |
11:35 | Regulatory participation | Facilitator TBC |
12:15 | Lunch | |
13:15 | Introduction to Delphi and other consensus-building methodologies | Kevin Moody |
13:35 | Discussion on feasibility and desirability of adopting a methodology for this work | Brian West |
14:15 | Agreement on timelines, people to invite to participate, logistics, etc. | EATG office |
14:45 | Summary and closure | Pieter Vanholder |
15:00 | Adjourn |
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