On 28 March 2023, EATRIS and the European Patients’ Forum (EPF), together with affiliated partner European AIDS Treatment Group launched the Patient Engagement Resource Centre (PERC), a platform designed to help researchers better engage patients in their research. The PERC was developed as part of the Horizon 2020 project, EATRIS-Plus.
The PERC is an easy to navigate platform that offers publicly available guidance, training and practical tools to help researchers get started with patient engagement. It is also a practical tool for patients to access and promote to the researchers they collaborate with. The Centre features selected relevant public resources to help researchers understand the basics of patient engagement, and guide them through the different phases of patient engagement: from planning to conducting and evaluating, with the ultimate aim to foster meaningful patient engagement practices in research.
The PERC also features a “Frequently Asked Questions” section for researchers who are new to patient engagement, as well as a “Stories” video library which includes testimonials from researchers, patients and carers who worked together.
The Patient Engagement Resource Centre is publicly available at www.patient-engagement.eu
Attached you can also find the official press release.
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