Quality of Life

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Improving health-related quality of life and holistic well-being throughout the lives of people living with HIV

Purpose

To engage, inform and empower all people living with and affected by HIV in improving their health-related quality of life and holistic well-being throughout their lives.

Expected 2025 high-level outcome

Healthy communities of people living with and affected by HIV, with enhanced quality of life and access to effective, integrated health and support systems.

Scope

To engage, inform and empower people living with and affected by HIV from across Europe and Central Asia in:

ACCESSIBLY LINKED AND INTEGRATED QUALITY SERVICES

  • promoting integrated prevention, diagnosis, treatment and care approaches to the sexual health, mental health and quality of life of all people living with HIV throughout their life cycle, especially those at risk of limited service access, e.g. sex workers and substance users
  • promoting the integration of services that specifically address HIV, viral hepatitis, TB and co-morbidities
  • co-designing/developing and evaluating new and integrated services and models of care

CHALLENGING STIGMA AND DISCRIMINATION

  • advocating for improvements in laws, regulations, policies and practices that undermine the full exercise of the human rights and/or criminalise the lives and behaviours of all people living with and affected by HIV
  • promoting community-based, peer-led or community-influenced HIV-related services that are safe and secure for all people living with or affected by HIV, where people can learn and exchange information, meet allies and develop resilience
  • tackling stigma and discriminatory attitudes in our communities and among service providers, including relative to U=U promotion and increasing PreP awareness
  • participating in implementation research to improve service delivery and approaches to challenging legal and regulatory barriers to HIV, viral hepatitis, TB and STI services, especially in Central Europe, Eastern Europe and Central Asia

PROMOTING SUSTAINABILITY OF HEALTH AND COMMUNITY SERVICES

  • monitoring access to optimal treatment and diagnostic options and their sustainability, raising awareness to barriers, and making recommendations to responsible stakeholders
  • challenging undue use of intellectual property provisions to limit price competition and access to cheaper medicines

Programme Chair:
Mario Cascio

Programme Manager (interim):
Ann Isabelle von Lingen 

Programme Committee :
Magdalena Ankiersztejn-Bartczak
Anton Basenko
Ivana Benkovic
Nikos Dedes
Steven Doyle
Maka Gogia
Willian Gomes
Julian Hows
Rosaline M’bayo
Nyambe Mukelabai
Eliane Becks Nininahazwe
Nicoletta Policek
Bryan Teixeira
Lucia Trasca
Axel Vanderperre

 

You can find all Programme Newsletters here

Get involved

Are you living with HIV/AIDS? Are you part of a community affected by HIV/AIDS and co-infections? Do you work or volunteer in the field? Are you motivated by our cause and interested to support our work?

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