Ensuring that ongoing research continues to yield best quality new diagnostics, medicines, medical devices, care, as well as progress towards cure relative to HIV, viral hepatitis, TB, emerging infectious diseases, co-morbidities and STIs
Purpose
To engage, inform and empower all people living with and affected by HIV in ensuring that ongoing research continues to yield best quality new diagnostics, medicines, medical devices, care, as well as progress towards cure relative to HIV, viral hepatitis, TB, emerging infectious diseases, co-morbidities and STIs.
Expected 2025 high-level outcome
Communities of people living with and affected by HIV engaged with all prospective and observational research processes in up-to-date diagnostics, medicines, medical devices and care relative to HIV, viral hepatitis, TB and STIs.
Scope
To engage, inform and empower people living with HIV and affected populations from across Europe and Central Asia in clinical and social science research, guideline development, and science and regulatory policy debates relative to:
NEW TREATMENTS RELEVANT FOR PEOPLE LIVING WITH HIV
- ageing processes/mechanisms in HIV (e.g. chronic inflammation and immune deficiencies)
- mental health (e.g. depression)
- cure strategies
- long-acting compounds
- alternative and additional incentives for medicine development and innovative R&D
- treatments for drug-resistant TB, including multidrug-resistant TB (MDR-TB) and extensively drug-resistant TB (XDR-TB)
- treatments for paediatric HIV
- new antibiotic development for bacterial STIs and new substances for viral STIs
DIGITALISATION
- data protection,
- e-health
- ethics
STANDARDS AND ETHICS
- research and development into patient reported outcomes (PROM) and experience (PREM)
- ensuring diversity of participants in all research
- health technology assessment to inform decision-making about priorities in HIV treatment and care
Programme Manager:
Giorgio Barbareschi
Programme Officers and Project Coordinators:
Fiona Greenhalgh
Programme Committee :
Magdalena Ankiersztejn-Bartczak
Gus Cairns
Paul Clift
David Haerry
Sean Hosein
Olimbi Hoxhaj
Arda Karapinar
Luís Mendão
Siegfried Schwarze
Richard Stranz
Axel Vanderperre
Alain Volny-Anne
You can find all Programme Newsletters here
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Are you living with HIV/AIDS? Are you part of a community affected by HIV/AIDS and co-infections? Do you work or volunteer in the field? Are you motivated by our cause and interested to support our work?
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