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Ensuring that ongoing research continues to yield best quality new HIV, viral hepatitis, TB and STI diagnostics, medicines, medical devices and care, as well as progress towards cure

Purpose

To engage, inform and empower all people living with and affected by HIV in ensuring that ongoing research continues to yield best quality new HIV, viral hepatitis, TB and STI diagnostics, medicines, medical devices, and care, as well as progress towards cure.

Expected 2025 high-level outcome

Communities of people living with and affected by HIV engaged with all prospective and observational research processes in up-to-date diagnostics, medicines, medical devices and care relative to HIV, viral hepatitis, TB and STIs

Scope

Engaging informed and empowered people living with HIV and affected populations from across WHO European region in clinical and social science research, guideline development, and science and regulatory policy debates relative to:

LONG-ACTING COMPOUNDS AND IMPLANTS

  • ART and PrEP delivered beyond strict daily regimens
  • slow release implants

CURE

  • HIV and hep B cure
  • broadly neutralising antibodies (BNABs)
  • eradication strategies
  • immunotherapeutic strategies to control the viremia

NEW TREATMENTS

  • alternative and additional incentives for medicine development and innovative R&D
  • for drug-resistant TB, including multidrug-resistant TB (MDR-TB) and extensively drug-resistant TB (XDR-TB)
  • for paediatric HIV
  • new antibiotic development for bacterial STIs and new substances for viral STIs

DIGITALISATION

  • data protection,
  • e-health
  • associated ethical standards

STANDARDS AND ETHICS

  • patient-reported outcomes measures (PROM) and patient-reported experience measures (PREM)
  • improving the ethics, efficiency and effectiveness of interventions that increase testing uptake and the rollout of PrEP, and optimise care for all people living with HIV, viral hepatitis, TB and STIs
  • ensuring diversity of participants in research on HIV, viral hepatitis, TB and STIs
  • health technology assessment to inform decision-making about priorities in HIV treatment and care

Programme Chair:
TBD

Programme Manager:
Giorgio Barbareschi

Project Officer:
Fiona Greenhalgh

Programme Committee :

Magdalena Ankierzhtein-Bartczak

Gus Cairns

Vladimir Chugrov

Paul Clift

Giulio Maria Corbelli

Nicolas Gateau

David Haerry

Sean Hosein

Grzegorz Jezierski

Maryan Said

Siegfried Schwarze

Richard Stranz

Axel Vanderperre

Alain Volny-Anne

Brian West

Get involved

Are you living with HIV/AIDS? Are you part of a community affected by HIV/AIDS and co-infections? Do you work or volunteer in the field? Are you motivated by our cause and interested to support our work?

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