Sign-ons, declarations and joint statements
EATG has been partnering up with NGOs, international organisations and alliances to support causes that are important or interesting for the communities of people living with or affected by HIV and co-morbidities. This list contains documents, declarations and statements that EATG has co-signed or endorsed since 2015:
06.02.2019 – #EU4Health members
This is a reaction letter to the European Commission’s Reflection Paper: Towards a Sustainable Europe by 2030, co-signed by members of the #EU4Health campaign. We are joining our voices to welcome the paper, however we regret that this political debate is three and a half years overdue and just before the mandate of the current Commission comes to an end. We are calling for an overarching EU SDG Strategy to guide all the actions of the EU and its member states, as the only viable option to achieve the goals of the SDG, including health targets.
01.03.2018 – EATG and EU Civil Society Forum on HIV, TB and Viral Hepatitis
On 26 February, the EU Civil Society Forum on HIV, TB and Viral Hepatitis wrote to the Romanian Ministry of Health to request that it uses its convening power and experience during its Presidency of the Council of EU (first semester of 2019) in order to help establish an effective EU-wide framework for viral hepatitis monitoring by obtaining the political commitment from fellow health ministers.
10.03.2018 -EATG and EU Civil Society Forum on HIV, TB and Viral Hepatitis
On 6 March the EU Civil Society Forum on HIV, TB and Viral Hepatitis wrote to the European Commission President Juncker, as well as Budget and Health Commissioners, in response to the plans to move health matters and funding into the larger single market category within the next EU 7-year budget starting from 2020. The civil society is urging them to treat health as an imperative of EU policy and not as a mere commodity, as the current plan would lead to.
12.03.2018 – Lawyers Collective
Indian civil society pushes for ‘Government Use’ compulsory license on MDR-TB Drugs
Survivors of drug resistant tuberculosis, health organisations and the TB community in India and across the globe have appealed to the Prime Minister of India to issue a government use compulsory license for two of the essential drugs for Drug-Resistant Tuberculosis (DR-TB) treatment- Bedaquiline and Delamanid to encourage generic competition.
21.03.2018 – INPUD, IDPC
Call for revision of guidelines on International Standards for the Treatment of Drug Use Disorders
‘The guidelines in their current form are not aligned with current UN guidance on harm reduction, nor grounded in evidence. We are concerned that the treatment guidelines in their current state will promote stigma and discrimination against people who use drugs. We call on the WHO and the UNODC to postpone the release or future dissemination of the document until these shortcomings are appropriately addressed.’
21.03.2018 – TB Europe Coalition
Organisations are urging Commissioner Andriukaitis to foster EU Member States’ response to Tuberculosis
‘Despite decreasing trends in TB incidence and mortality rates, the region of Eastern Europe and Central Asia (EECA) continues to remain home to the highest rates of multi-drug resistant TB (MDR-TB) […] The TB crisis in the EU is not only an economic problem. It is also an example of inadequate protection of human rights, especially the right to health, thus we urge you to reaffirm the EU’s commitment to the right to health and prioritise the elimination of TB.’
28.03.2018 – Nobody Left Outside initiative
Civil society and patient organisations are seeking EU leadership and action on HIV, hepatitis and TB
The European AIDS Treatment Group along with other civil society and patients organisations has co-signed an open letter to Commissioner Andriukaitis in view of the upcoming Staff Working Document on ‘Combating HIV/AIDS, viral hepatitis, sexually transmittable diseases and tuberculosis in the EU and neighbouring countries’. The organisations are urging for effective EU leadership and governance in response to the challenges these communicable diseases pose for the EU/EEA countries, in line with the SDG goals aiming for the end of epidemics by 2030 (3.3) and Universal Health Coverage (3.8).
08.05.2018 – Alliance of civil society organisations
Civil society organizations come forth with a joint statement in advance of the 39th meeting of the Global Fund board.
With a joint statement addressed to the Global Fund, more than 40 international, regional and national organizations have voiced their deep concerns regarding Global Fund’s eligibility policy and the limitations to access necessary resources in various settings that it poses. The organizations seek that access to funding for countries moving to high income status is ensured as well as access to funding for HIV, TB and malaria is not restricted by particular eligibility criteria that would work against the founding principles in the Framework Document and undermine the strategy to end these three diseases.
06.06.2018 – Hep B&C Policy Association
Secure sustainable funding for viral hepatitis C elimination plans
-Ensure that countries have a comprehensive, costed hepatitis C elimination strategy in place, including a comprehensive monitoring along with the cascade of care in line with the criteria developed by ECDC and WHO Europe;
-Determine their country-level disease and economic burden of HCV by measuring direct and indirect socio-economic cost to improve the response towards HCV elimination, paying attention to the close link between HCV and HIV in some populations;
-Develop country and population-specific models, as viral hepatitis investment cases, to estimate lifetime costs, quality-adjusted life expectancy, and incremental cost-effectiveness ratios of different screening and treatment strategies with comparison with no action;
-Allocate sufficient resources for training and research, developing robust models of care for tackling HCV, and urgently and effectively fulfil Strategic Directions 2, 4 and 5 of the WHO Global Health Sector Strategy;
-Recognise the need for the European Union to engage in HCV elimination by establishing a clear political road map and call for European financial institutions to raise public or private funding and use elimination programmes as a development tool;
-Encourage and engage all the stakeholders to collaborate in the development of innovative financing tools like social impact bond and others, with the aim of launching new social services and financing prevention services, including harm reduction, contributing to HCV elimination in a sustainable way;
-Exchange and implement best practices on funding healthcare and HCV elimination, including via micro-elimination approaches, at the national, regional and local levels to meet the WHO elimination goals by 2030 and preferably much earlier.
24.07.2018 – HIV Power Shift #AIDS2020ForAll
An alliance of members of networks in the United States of people living with HIV and key populations ask for the IAS AIDS2020 conference to be moved outside the US.
AIDS 2020 must be moved. We recognize the laudable desires to showcase the achievements of the unique and well-resourced HIV efforts of San Francisco, as well as the goals of shining a spotlight on the less-resourced sister city of Oakland, and the impact of U.S. policies that hit hard in the U.S. South and across the globe. However, we need you to know this: This is a distinctly dangerous and volatile time in the United States, where long-standing biases and human rights violations against people of color, immigrants, trans people, LGBQ people, and other key populations are rapidly escalating, multifaceted and pernicious. In 1992, the conference relocated from Boston to Amsterdam due to the HIV entry ban.
27.07.2018 – Civil Society Organisations
On the Tipping Edge – Lubljana Declaration 2.0
‘Call for urgent action in response to rapidly expanding HIV epidemics among gay men, other men who have sex with men and trans people in newer EU member states and enlargement countries. A new era of sexual health and wellbeing for gay men, other men who have sex with men and trans people, free from fear, stigma and discrimination, is being ushered in by massive declines in HIV infections in cities such as London, New York and San Francisco, achieved through community engagement and activism combined with investments in new tools and approaches, delivered as part of a comprehensive package of sexual health services.
Elsewhere, too many are left behind…’
24.09.2018 – European Public Health Alliance (EPHA)
Europe, Let’s Do More for Health! a joint NGOs statement calling for a strong EU health agenda, in the wake of the European Parliament Elections in May 2019 and the renewal of the European Commission in 2019.
We believe that a Europe where all people are as healthy as they can be throughout their lives is possible.
A Europe that promotes well-being for all people of all ages, and where people can live, work and age in sustainable and healthy environments.
A Europe that supports timely access to affordable, high quality healthcare for all.
06.11.2018 – International Rectal Microbicides Alliance (IRMA), Treatment Action Group (TAG), NGOs and other individuals
The signatories to this open letter addressed to IAS express their concerns regarding International AIDS Conference (AIDS 2020), currently planned for early July 2020 in San Francisco and Oakland in the United States.
The concerns expressed in the letter are stemming from existing policies that induce entry bans, criminalisation related to key populations, financial implications and the pre-election period in the USA.
13.11.2018 – Global Health Advocactes (GHA), European Public Health Alliance (EPHA)
Prioritising health in the next EU budget by re-establishing a robust, stand-alone Health Programme
As a group of patient and public health civil society organisations, representing many networks of European citizens expecting good health, we are writing to recommend that the European Parliament take a strong position on safeguarding the EU Health Programme in the next EU Multiannual Financial Framework as an independent, stand-alone programme, with adequate political leadership and financial resources.
14.11.2018 – Eurordis & other patients organisations
Patients Call for Meaningful Involvement in European Cooperation on Health Technology Assessment (HTA)
Patients and their organisations welcome efforts set out in the EU proposal for a new legislation on health technology assessment (HTA) to adopt high quality methods and standards when assessing health technologies they use for their own treatment. However, patients and their organisations are convinced that changes need to be made to the legislation before it is adopted to guarantee an adequate involvement of patients in all HTA activities (joint consultations, early dialogues, scoping and assessments), which is essential to help HTA assessors determine the relative efficacy and safety of health technologies.
09.08.2017 – TAG
Research on TB for pregnant women
Call initiated by the Treatment Action Group (US) for supporting TB research for pregnant women that is addressed to the Task Force on Research Specific to Pregnant and Lactating Women (PRGLAC). This is a US body addressing gaps in knowledge and research on safe and effective therapies for pregnant women and lactating women. It will have repercussion out on the research community beyond the US.
11.09.2017 – MSF
Request for the review of R&D incentives
In an open letter and open submission, thirty-three civil society organisations have called on the European Commission to abolish the supplementary protection certificates (SPC) mechanism and to stop encouraging the inclusion of SPCs – or similar mechanisms, such as patent term extensions – in free trade agreements with other countries.
03.10.2017 – ILGA
Speaking up against the harassment of LGBTI persons in Azerbaijan
Human rights organisations are calling on international institutions to put their human rights mandates into practice. We urge them to use all possible mechanisms available to strongly condemn the situation in Azerbaijan, such as public statements and bilateral diplomacy.
06.10.2017 – EPHA
Sustainable Development Goals should be reflected in EU trade policy
Civil society organisations call on the European Commission to design and implement a responsible trade policy which ensures health sustainability, enables public health action on health security threats, and mainstreams the EU commitments under the UN Sustainable Development Goals (SDGs). This is in line with the obligation in the EU treaties to ensure a high level of health protection in all EU policy areas (TFEU article 168).
09.10.2017 – EATG and alliance of civil society organisations
Testing statement on most affected populations
“We recognise that European Testing Week 2017 marks a significant step up in advocacy and action to challenge existing barriers to safe voluntary testing, both real and perceived, and to truly ensure nobody is left behind. Building on this unique opportunity, we are pleased to stand in solidarity with others representing or working with our peer-led country or regional networks, and with HIV/Hepatitis organisations to promote this vital testing campaign.”
17.02.2016 – Hepatitis B&C Public Policy Association
The signatories of the declaration, gathered in Brussels on the occasion of the first European Union HCV Policy Summit, on 17 February 2016, are committed to the elimination of hepatitis C in Europe.
19.02.2016 – EATG EU HIV CSF
Investigation of MSM living with HIV STI diagnosis is seen as discriminatory persecution
Pan-European Networks of communities of people living with and affected by HIV, doctors and scientists call upon the Government of the Czech Republic to immediately stop the Prague Public Health Authority’s persecution and intimidation of people living with HIV, and to return to evidence based and proven practices in HIV prevention, testing and care in the Czech Republic.
31.03.2016 – European Alliance for Responsible R&D and Affordable Medicines
Joint declaration for a research and development system that is driven by public health needs and delivers medicines that are universally accessible and affordable
In Europe and worldwide, the price of new medicines is rising year on year, especially where there is no therapeutic alternative. As a result, treatment for life-threatening infections and diseases, like HIV/AIDS, cancer and hepatitis C, are increasingly unaffordable for both individuals and national health systems. This is the result of an ineffective and costly research and development (R&D) system that rewards new medicines with fixed-term monopolies (patents) and encourages unaffordable price setting.
17.04.2016 – EPHA and NGOs
Civil society urges Member States to support the Dutch EU Presidency’s vision on access to affordable medicines
We strongly support the Dutch European Union (EU) Presidency’s critique of the current over-protection and misuse of intellectual property and related rights for pharmaceuticals, and its goal to better balance the reward for innovation against the assurance of affordability of medicines.
31.04.2016 – AIDES and NGOs
Brussels Appeal for Access to PrEP
At a time when so many therapeutic milestones regarding HIV/AIDS have been achieved and when, for the first time, the end of the epidemic is possible if we combine prevention, early diagnosis and immediate treatment, it should be the responsibility of health stakeholders to implement all the tools available, including PrEP, to reach the goal of a world without AIDS.
12.09.2016 – TB Europe coalition
CSO letter to 2017 Estonian Presidency on tuberculosis
The region of Eastern Europe and Central Asia (EECA) is home to the fastest growing HIV and HCV epidemics and the highest rates of multi-drug resistant TB (MDR-TB) in the world. According to WHO, 2013 there were 80% more new HIV cases in Europe compared to 20041. UNAIDS considers the EECA as the only region in the world where HIV prevalence continues to grow2. At the same time, in many countries of the European region, rates of MDR-TB3 are alarming. EECA has the world’s highest rates of new TB patients with MDR-TB4, which has become an epidemic on its own, and TB is among one of the leading causes of death of HIV positive people in the region. Moreover, in many countries hepatitis C prevalence nears 80% in people who use drugs5 and the number of related deaths rises yearly.
30.09.2016 – European Alliance for Responsible R&D and Affordable Medicines
Open letter to the European Commission on the follow-up of the June 2016 EU Council Conclusions on “Strengthening the Balance in the Pharmaceutical Systems in the EU”
Civil society organisations urge the EU Health Ministers and the European Commission to undertake a much-needed research on the current models of research and development, and an in-depth evaluation of the impact of IP-related incentives. However, we are concerned about a lack of transparency and a lack of a balanced stakeholder involvement in the process.
03.10.2016 – Universities Allied for Essential Medicines
Open letter to the candidates for Director-General of the World Health Organization: Will you support an R&D agreement that puts patient needs at the centre of R&D?
We would like to invite the candidates to take a clear position on the future of WHO’s work in supporting a patient-centred R&D system.
29.01.2015 – ITPC and TAG
Rejection of sofosbuvir patent in India and voluntary license scheme of Gilead Sciences.
We are at a critical juncture, where curative treatment for hepatitis C is available on the market but virtually inaccessible to most of the world’s people living with HCV. A recent decision by India’s Patent Office rejecting one of Gilead’s key patents for sofosbuvir is an important step to potentially open up more generic competition outside the restrictive licenses. But Gilead is using every trick in the book to get the decision reversed, including lobbying the Indian Government. Help us tell Gilead to drop their case and do the right thing to promote global treatment access.
16.02.2015 – TB Europe Coalition
Appeal to EU Commissioner Andriukaitis to take leadership in tuberculosis awareness and treatment
The letter welcomes Andriukaitis’ appointment as Commissioner and urges him to champion TB in Europe. The letter requests that the Commissioner uses his presence at the upcoming Ministerial Meeting on TB, hosted by Latvia, to ensure cooperation between the EC, member states and neighbouring countries and to also let us know about what plans the EC have to ensure the meeting is a success.
01.01.2015 – EATG
Community manifesto: We need PrEP now
Open letter from European HIV & LGBT community organisations and other concerned Europeans to pharmaceutical industries, European and national institutions on the need to introduce PrEP as soon as possible.
15.04.2015 – EATG and EU HIV Civil Society Forum members
Public Health Protection Law – Protest against the 2015 amendment, Introduction of mandatory HIV testing of certain at-risk populations
17.06.2015 – PICUM and EPHA
To the meeting of the minsters of health before the EPSCO Council June 2015 regarding the health dimension of the European agenda of migration
Emphasising the need for access to treatment and prevention services for undocumented migrants and individuals with an unclear legal status.
15.09.2015 – EATG and EU HIV Civil Society Forum
Joint letter for an integrated policy framework on HIV, TB and HCV
Civil society representatives call the EU to renew the EU policy framework by integrating HIV, viral hepatitis and tuberculosis into one overarching policy.
01.11.2015 – EuroPrEP and civil society organisations
Facilitating access to PrEP in Europe through reduced pricing
Current prevention options in Europe include abstinence, condoms, and monogamy. Better access to treatment for people living with HIV means that they are not infectious to others. But altogether these haven’t solved the problem and we still have a raging HIV epidemic in Europe and beyond.
18.11.2015 – EU HIV Civil Society Forum
Importance of the consolidated EU position for the UNGASS 2016 outcome document Letters to the Dutch government in preparation for the Dutch EU presidency, EU high level group on drugs about the EU position at UNGASS on Drugs in 2016.