Publications | EATG http://www.eatg.org European AIDS Treatment Group Thu, 16 Nov 2017 19:34:07 +0000 en-US hourly 1 https://wordpress.org/?v=4.8 OptTEST policy briefs, legal and regulatory database and advocacy tools http://www.eatg.org/publications/opttest-policy-briefs-legal-and-regulatory-database-and-advocacy-tools/ Sun, 05 Nov 2017 20:26:17 +0000 http://www.eatg.org/?post_type=publications&p=6651 A number of tools and resources have been developed within the OptTEST by HiE project to optimise HIV testing and linkage to care. They can be found below, organised under five main categories. Several of the tools and materials have been translated into different European languages. These publications and tools were produced with substantial contribution from EATG and its members, thus ensuring solid involvement of the representatives of the communities of people living with and affected by HIV.

Implementing Indicator Condition (IC) Guided Testing

Improving Linkage To HIV Care

Addressing Legal And Regulatory Barriers To Testing

Addressing Stigma

Assessing Cost-Effectiveness Of Testing

Policy briefs:

Scaling up early diagnosis for HIV through expanded implementation of provider-initiated HIV testing: Final OptTEST_expanding provider initiated testing

Scaling up early diagnosis for HIV through diversifying HIV testing approaches beyond clinical settings: FINAL scaling up testing via diversified testing beyond medical settings

 

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ACCESS TO HIGHLY EFFECTIVE HEPATITIS C TREATMENT IN PORTUGAL – A COMMUNITY PERSPECTIVE http://www.eatg.org/publications/access-to-highly-effective-hepatitis-c-treatment-in-portugal-a-community-perspective/ Fri, 03 Feb 2017 10:48:14 +0000 http://www.eatg.org/?post_type=publications&p=3585 EATG is pleased to share this new resource: Access to highly effective hepatitis C treatment in Portugal – A Community Perspective. This case study demonstrates how a country with limited resources, negotiating within the existing financial framework, confidential price negotiations and with ambitious objectives, can yield practical results.

The document presents an example of successful community engagement and activism for highly effective hepatitis C treatment, led by the Grupo de Ativistas em Tratamentos (GAT). It summarises the price and reimbursement negotiations in Portugal. Importantly, it also identifies lessons and recommendations that readers may find helpful in advocating in their own countries for universal (or as close as possible) access to these and other life-saving drugs.

The document explores several key components of successful negotiations process in a context of confidential price negotiations, including the need for community empowerment as well as effective multisectoral collaboration across PLHCV, clinicians, hospital administrators, academics, media contacts and decision makers.

The PWG recommends this document and hopes it will prove useful to others who are working for speedy access to state-of-the-art medicines in their own countries.

Click here for the case study: Community advocacy for access to DAA’s in Portugal 12.2016

Click here for the appendix and additional considerations: Access to DAA’s Portugal – appendix

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Twenty years of EATG – Anniversary publication 2012 http://www.eatg.org/publications/twenty-years-of-eatg-anniversary-publication-2012/ Wed, 16 Nov 2016 16:19:21 +0000 http://www.eatg.org/?post_type=publications&p=2978 EATG celebrated 20 years of success in the forefront of HIV activism, treatment literacy and advocacy, and political work with this brochure in 2012.

EATG_20 years report

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PrEP in Europe Initiative report http://www.eatg.org/publications/prep-in-europe-initiative-report/ Mon, 17 Oct 2016 19:09:52 +0000 http://www.eatg.org/?post_type=publications&p=2581

The PrEP in Europe Initiative (PiEi) is a new initiative, a coalition of European organisations and activists concerned with HIV prevention and specifically with ensuring access to PrEP (pre-exposure prophylaxis) among people at high risk of HIV.

Our mission is threefold: to disseminate up-to-date information on PrEP access in Europe; to influence policy makers and health funders to adopt PrEP in their countries; and to support organisations, groups and individuals advocating for PrEP in their own countries and communities.

It is run by a steering committee of pan-European advocacy organisations including AVAC, NAM/ AIDSMAP, EATG, AIDS Action Europe, the National AIDS Trust and AIDES.

PiEi is in the process of establishing a permanent secretariat and website, and it already has its own social media page on Facebook.

Read the latest report from May 2017 here: PEI Report May 2017

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Open letter to the European Commission on the follow-up of the June 2016 EU Council Conclusions http://www.eatg.org/publications/open-letter-to-the-european-commission-on-the-follow-up-of-the-june-2016-eu-council-conclusions/ Tue, 04 Oct 2016 08:42:20 +0000 http://www.eatg.org/?post_type=publications&p=2455

On 17 June, 2016, all 28 European Union (EU) Health Ministers agreed on Council Conclusions to address the imbalances in the pharmaceutical systems in the EU and its Member States. In these Conclusions, the Ministers invited the European Commission to undertake a critical review of the impact of current intellectual property (IP) related incentives on biomedical innovation.

Evidence suggests that current levels of excessive IP rights and related monopoly protections do not contribute to genuine needs-driven medical innovation, and delay generic competition. Instead, this contributes to the development of ‘me too’ medicines, anti-competitive behaviours and high prices of new treatments that are not related to the costs of development.

Read the open letter to the follow-up of the June 2016 EU Council Conclusions on “Strengthening the Balance in the Pharmaceutical Systems in the EU and its Member States” here: Open letter to EC-Council Conclusions – 13Sept

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Open letter to Frans Timmermans concerning EU strategy for HIV, TB and viral hepatitis http://www.eatg.org/publications/open-letter-to-frans-timmermans-concerning-eu-strategy-for-hiv-tb-and-viral-hepatitis/ Tue, 04 Oct 2016 08:40:14 +0000 http://www.eatg.org/?post_type=publications&p=2453

We are calling for an EU level strategy underpinned by EU member states’ political agreement and a comprehensive European Commission Action Plan as one of the essential tools to achieve these objectives. We firmly believe that the EU will thereby deliver for the well-being of populations, to reduce health inequalities and to strengthen public health systems in Europe.

Read the open letter to VEU Vice President Timmermans here: Letter to Commission Vice-President on the EU policy framework on viral hepatitis HIV tuberculosis

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Open letter concerning the 2017 Estonian Presidency of the European Union http://www.eatg.org/publications/open-letter-concerning-the-2017-estonian-presidency-of-the-european-union/ Tue, 04 Oct 2016 08:36:19 +0000 http://www.eatg.org/?post_type=publications&p=2451

The region of Eastern Europe and Central Asia (EECA) is home to the fastest growing HIV and HCV epidemics and the highest rates of multi-drug resistant TB (MDR-TB) in the world. According to WHO, 2013 there were 80% more new HIV cases in Europe compared to 20041. UNAIDS considers the EECA as the only region in the world where HIV prevalence continues to grow2. At the same time, in many countries of the European region, rates of MDR-TB3 are alarming. EECA has the world’s highest rates of new TB patients with MDR-TB4, which has become an epidemic on its own, and TB is among one of the leading causes of death of HIV positive people in the region. Moreover, in many countries hepatitis C prevalence nears 80% in people who use drugs5 and the number of related deaths rises yearly.

Please read the open letter to the Prime Minister of Estonia signed by 66 organisations from 34 European countries: CSO letter to Estonia’s PM FINAL

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European AIDS Treatment News – EATN – Complete collection http://www.eatg.org/publications/european-aids-treatment-news-eatn-complete-collection/ Wed, 03 Aug 2016 18:36:18 +0000 http://www.eatg.org/?post_type=publications&p=1816 EATN front

 

The EATG published the European AIDS Treatment News (EATN) for 10 years. This “newsletter” disseminated information for expert patients and treatment activists working across Europe. It contained the latest about medicines development, clinical trials and HIV/AIDS related policy. It was phased out and replaced by the current daily or weekly newsletter, and then increasingly by social media. Distributed by fax and email, it was a beacon of hope and information to many.

This invaluable collection of documents from the early days of patient advocacy and HIV/AIDS activism is now available here for you to read, download and analyse.

1992

1992vol1n1

1992vol1n2

1992vol1n3

1992vol1n4

1992vol1n5

1993

1993vol2n1

1993vol2n2

1993vol2n3

1993vol2n4

1994vol2n5

1993vol1n6

1994

1994vol3n1

1994vol3n2

1994vol3n3

1994vol3n4

1994vol3n5

1994vol3n6

1995

1995vol4n1

1995vol4n2

1995vol4n3

1995vol4n4

1995vol4n5-6

1996

1996vol5s1

1996vol5s2

1996vol5n3

1996vol5n4

1996vol5n5

1996vol5n6

1997

1997vol6n1

1997vol6n2-3

1997vol6n4

1997vol6n5

1997vol6n6

1998

1998vol7n1

1998vol7n2

1998vol7n3

1999

1999vol8n1

1999vol8n2

1999vol8n3-4

1999vol8n5-6

2000

2000vol9n1-2

2000vol9n3

2000vol9n4

2000vol9n5

2000vol9n6

2001

2001vol10n1

2001vol10n2-3

2001vol10n4

2001vol10n5

2001vol10n6-page1-6

2001vol10n6

Pages 1-5 from 2001vol10n6

After 2001

EATN0502_en

EATN0501-en

EATN0402_en

EATN0401-en

EATN0301_en

EATN0601-en

EATN Russian edition

EATN0501-rus

EATN French edition

EATN0502_fr

EATN0501_fr

EATN0402_fr

EATN0401_fr

EATN0301_fr

EATN0601_fr

EATN Spanish edition

EATN SPRING06SPA

 

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Webinar 14/12/2015- HIV and Tuberculosis: Current Guidelines and Treatment Developments for HIV/TB Co-Infection http://www.eatg.org/publications/webinar-14122015-hiv-and-tuberculosis-current-guidelines-and-treatment-developments-for-hivtb-co-infection/ Tue, 12 Jul 2016 21:25:53 +0000 http://www.eatg.org/?post_type=publications&p=1379  

The European AIDS Treatment Group organised a webinar on Monday, Dec. 14, 4 to 5 p.m. CET to discuss the current HIV/TB co-infection epidemic and treatment guidelines as well as the health products pipeline under development.

The webinar intended to provide updated information for community representatives working in HIV/TB treatment advocacy in Europe.

Confirmed Speakers:

Masoud Dara

Senior Advisor of World Health Organization Office at the European Union.

Mike Frick

TB/HIV Project Officer of the Treatment Action Group (TAG).

Wim Vandevelde

EATG member and Chair of the Global Tuberculosis Community Advisory Board (TB-CAB).

 

The invited Speakers provided information about the current HIV/TB co-infection treatment and the barriers which are still limiting the control of the epidemic. They explained recent research developments in tuberculosis and how the current pipeline looked like, as well as the challenges that HIV/TB advocates can help to overcome.

Slide decks:

 

TB Drug Pipeline EATG — MFrick

TB-HIV in Europe.DrMasoudDara

 

Link to audio recording of the webinar

 

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Treatment Advocacy Training Manual – English and Russian versions http://www.eatg.org/publications/treatment-advocacy-training-manual-english-and-russian-versions/ Sat, 04 Jun 2016 17:40:00 +0000 http://www.eatg.org/?post_type=publications&p=873 Treatment Advocacy Training Manual English: Treatment Advocacy EN1

Treatment Advocacy Training Manual Russian: Treatment Advocacy RU1

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Treatment Literacy Training Manual – English and Russian versions http://www.eatg.org/publications/treatment-literacy-training-manual-english-and-russian-versions/ Sat, 04 Jun 2016 17:35:20 +0000 http://www.eatg.org/?post_type=publications&p=869 Treatment Literacy Training Manual English: Treatment Literacy EN

Treatment Literacy Training Manual Russian: Treatment Literacy RU

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Clinical Trial Sites across Eastern Europe and Central Asia http://www.eatg.org/publications/clinical-trial-sites-across-eastern-europe-and-central-asia/ Sat, 04 Jun 2016 09:29:22 +0000 http://www.eatg.org/?post_type=publications&p=824 Clinical trials and studies remain an important vehicle for some to access life-saving medication. In an attempt to make sure that pharmaceutical companies and CROs can diversify the list of trial sites and centres they use, ECAB commissioned, in December 2015, a research into possible centres where sufficient capacities, personnel and patients are available for the organisation of clinical studies.

Clinical Trial Sites in Eastern Europe and Central Asia HIV, HCV, TB – Brief Landscape Review: eeca_clinical_trial_sites_report_for_dissemination

Accredited clinical trial sites in Russia: List_of_accredited_clinical_trial_centres_infectious_diseases_Russia_ru

Accredited clinical trial sites in Ukraine: list_of_clinical_trial_sites_Ukraine_2015_quarter_3

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ECAB Review Paper and Brochure http://www.eatg.org/publications/ecab-review-paper-and-brochure/ Sat, 04 Jun 2016 08:39:21 +0000 http://www.eatg.org/?post_type=publications&p=803 In 2013-2014 ECAB performed a thorough review of its history and processes, and performed a scientific analysis of how ECAB has been a novel and unique vehicle for knowledge production in the cross-section of academia, the pharmaceutical industry, regulators and the civil society. The following documents have been produced in the course of the ECAB Review.

ECAB Review Summary Brochure: The impatient patient

Full Scientific Paper “The Impatient Patient”: bereczky-5-2

Conference Poster: 02_EATG_revPoster

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Webinar – Affordability and Access to Medicines http://www.eatg.org/publications/webinar-affordability-and-access-to-medicines/ Fri, 03 Jun 2016 19:13:04 +0000 http://www.eatg.org/?post_type=publications&p=799 This webinar on the basics of affordability of and access to medicines is somewhat focused on Eastern Europe though it is relevant to other parts of Europe, too.  It addresses the IP international framework and some of the underused ways around it to ensure access to affordable state of the art medicines for HIV, TB and HCV. It contains a discussion on voluntary licensing (e.g. through the Medicines Patent Pool, limits, improvements and red lines towards industry), and the underused possibilities of compulsory licensing (also including for prevention). There is also some discussion on the challenges of TRIPS + provisions and the problems brought by the Deep Free Trade Agreements to Moldova, Ukraine and Georgia in terms of hindering access to cheaper quality medicines.

http://arkadinemea-events.adobeconnect.com/p36kfblwppm/

The presentations can also  be viewed here:

Boyan Konstantinov: https://www.dropbox.com/s/ypn3vnxj2aqrn3z/160422%20KONSTANTINOV_EATGWebinar-2.pptx?dl=0

Esteban Burrone: https://www.dropbox.com/s/b1fn0pi2k39m67n/160422%20BURRONE_EATG%20Webinar%5B1%5D.pptx?dl=0

 

 

 

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EATG + AVAC Prevention Summit 1 Report http://www.eatg.org/publications/eatg-avac-prevention-summit-1-report/ Fri, 03 Jun 2016 18:46:16 +0000 http://www.eatg.org/?post_type=publications&p=796 New Developments in HIV Prevention Meeting Report 2015

 

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STEPS – A community initiative to design the pathway to a long-term remission of HIV infection – Report http://www.eatg.org/publications/steps-a-community-initiative-to-design-the-pathway-to-a-long-term-remission-of-hiv-infection-report/ Fri, 03 Jun 2016 18:24:55 +0000 http://www.eatg.org/?post_type=publications&p=789 STEPS 2015 Workshop_Report

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Sitges Meeting VI Report http://www.eatg.org/publications/sitges-meeting-vi-report/ Fri, 03 Jun 2016 18:11:46 +0000 http://www.eatg.org/?post_type=publications&p=784 SITGES VI report

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Sitges Meeting VII Report http://www.eatg.org/publications/sitges-meeting-vii-report/ Fri, 03 Jun 2016 18:10:58 +0000 http://www.eatg.org/?post_type=publications&p=782 Sitges VII report

 

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EUROCOORD Community Workshop Report and Slides http://www.eatg.org/publications/eurocoord-community-workshop-report-and-slides/ Fri, 03 Jun 2016 18:08:19 +0000 http://www.eatg.org/?post_type=publications&p=767 EuroCoord-Worskhop-Report-Nov-2015-FINAL

SP_gender gap

DA_david

KP_EuroCoord achievements

KP_Cohort basics

BT_November 2015 ECAB-Eurocoord

MP_Eurocoord_EATG joint workshopnovember2015_def

OK_Co-infections – talk 1

KP_EuroCoord application

JDA_presentationJDALP

FB_clinic_amaseeatg

DB_EATG_Oral presentation

AM_EC_Eurocoord_EATG workshop_Brussels_09 11 15

PR_Brussels_EATG_handout_Reiss

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EATG + AVAC Prevention Summit 2 Report http://www.eatg.org/publications/eatg-avac-prevention-summit-2-report/ Fri, 03 Jun 2016 17:41:15 +0000 http://www.eatg.org/?post_type=publications&p=761 The report from the meeting gives an excellent summary of the entire event with links to the presentations.

Executive Summary Meeting Report Final

The videos shot at the Prevention Summit, produced and edited by prevention champion Nick Feustel make advocacy and science results even more accessible:

Prevention Summit 2016 (1/3): PrEP from georgetown media on Vimeo.

 

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SITGES VIII MEETING Access to HCV Treatment in Europe 53 All Inclusive? http://www.eatg.org/publications/test-publication/ Thu, 21 Jan 2016 16:47:09 +0000 http://www.eatg.org/?post_type=publications&p=404 Sitges VIII Meeting_FINAL_18.12

Access to HCV Treatment in Europe – presentation

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