Results: Long term health perspectives of people living with HIV in Europe
The EATG in collaboration with Volle Maan Communicatie Bureau conducted a study titled ‘Long term health perspectives of people living with HIV in Europe’ in 8 European countries (Italy, The Netherlands, Spain, France, United Kingdom, Portugal, Romania and Belgium) in 2016. The goal of the research was to look into the question of ‘What is on the minds of people living with HIV in Europe in terms of their long term health, and how do they act?’.
A draft questionnaire was first developed in group interviews in the Netherlands and also reviewed by representatives of the eight participating countries. The final online survey with multiple choice questions was shared by the national or regional organisations of people living with HIV during May – September 2016.
The findings show the following:
- More attention for side effects is needed. 40% reports side effects of current medication, often limiting them in their daily life and often not fully discussed with their healthcare professional.
- More attention for other health conditions is needed. Almost half of the respondents have another health condition besides HIV and 2/3 of them report this other health condition has more impact than HIV.
- In consultations with health care professionals, people living with HIV clearly would like to see more attention given to their long term health.
- If they were to switch to different HIV medications, long term health and a low risk of long term side effects are by far the two most important aspects in the eyes of respondents living with HIV in Europe.
The detailed results over the trends in the 8 countries can be found here.