Join us for a webinar about patient engagement in the process of research and development of medicines on Thursday, September 6 from 18:00 to 19:15 CET.
Four European patient organisations (EPF, EATG, EURORDIS and Alzheimer Europe) and a research foundation (SDJ) invite you in a discussion about what patient engagement is, why this is important, its potential benefits and how it should look like. We also aim to explore how to make patient engagement possible for patients who may have more specific needs such as people with dementia and children and young people living with a medical condition.
This webinar is for patients, carers, patients’ representatives and community groups from all disease areas.
If you are interested in this important topic and want to learn more about patient engagement across different patient groups, please register for this webinar here:
After registering, you will receive a confirmation email containing information about joining the webinar.
Introduction to the Patient Engagement webinar series
Nicola Bedlington, EPF
The PARADIGM Project
Mathieu Boudes, PARADIGM Coordinator
What Patient Engagement is and how it should look like
Engaging with industry. The ECAB example
Giulio Maria Corbelli, EATG
How to engage with EMA and HTA
Elisa Ferrer, EURORDIS
Patient engagement in the case of potentially vulnerable populations
The case of people with dementia
Ana Diaz, Alzheimer Europe
The case of children and young people
Begonya Nafria Escalera, Sant Joan de Déu
Chaired by Koen Block, EATG
The webinar is organised by four European patient organisations and a research foundation. To know more about these organisations please visit:
European Patients Forum (EPF): www.eu-patient.eu
European AIDS Treatment Group (EATG): www.eatg.org
European Organisation for Rare Diseases (EURORDIS): www.eurordis.org
Alzheimer Europe: www.alzheimer-europe.org
Sant Joan de Déu Barcelona Hospital (SJD): www.sjdhospitalbarcelona.org
You can check the recording of the webinar here.
You can download the presentations here.
You can read the follow-up blog here.