EATG » Webinar: Patient Engagement on Medicines Research & Development

Webinar: Patient Engagement on Medicines Research & Development

Join us for a webinar about patient engagement in the process of research and development of medicines on Thursday, September 6 from 18:00 to 19:15 CET.

 

Four European patient organisations (EPF, EATG, EURORDIS and Alzheimer Europe) and a research foundation (SDJ) invite you in a discussion about what patient engagement is, why this is important, its potential benefits and how it should look like. We also aim to explore how to make patient engagement possible for patients who may have more specific needs such as people with dementia and children and young people living with a medical condition.

 

This webinar is for patients, carers, patients’ representatives and community groups from all disease areas.

 

If you are interested in this important topic and want to learn more about patient engagement across different patient groups, please register for this webinar here:

https://attendee.gotowebinar.com/register/1233745897374721282

 

After registering, you will receive a confirmation email containing information about joining the webinar.


Webinar agenda

 

 

Introduction to the Patient Engagement webinar series

Nicola Bedlington, EPF

 

The PARADIGM Project

Mathieu Boudes, PARADIGM Coordinator

 

What Patient Engagement is and how it should look like

Engaging with industry. The ECAB example

Giulio Maria Corbelli, EATG

How to engage with EMA and HTA

Elisa Ferrer, EURORDIS

 

 

Patient engagement in the case of potentially vulnerable populations

The case of people with dementia

Ana Diaz, Alzheimer Europe

The case of children and young people

Begonya Nafria Escalera, Sant Joan de Déu

 

Q&A

Chaired by Koen Block, EATG

 


 

The webinar is organised by four European patient organisations and a research foundation. To know more about these organisations please visit:

 

European Patients Forum (EPF): www.eu-patient.eu

European AIDS Treatment Group (EATG): www.eatg.org

European Organisation for Rare Diseases (EURORDIS): www.eurordis.org

Alzheimer Europe: www.alzheimer-europe.org

Sant Joan de Déu Barcelona Hospital (SJD): www.sjdhospitalbarcelona.org

 

This webinar series is supported by PARADIGM (www.imi-paradigm.eu)


[UPDATE]

You can check the recording of the webinar here.

You can download the presentations here.

You can read the follow-up blog here.

News categories: R&D, Webinar, Scientific research