In a blog post, IAS has published HIV+ researcher and activist Bruno Spire’s proposal for a new, better and more functional GIPA Principles. The Greater Involvement of People with HIV/AIDS Principles (based on the Denver Principles) requires that people living with HIV/AIDS should be in positions where they can actively shape and influence policies that affect them.
Spire proposes a review of these principles to make them more inclusive, to reflect better the lived realities of PLHIV, and to overcome some of the shortcomings of the original GIPA Principles.
“I think that we should have an alliance between people who have classical expertise and people living with HIV who have life expertise of HIV and who should have the political power to tell the experts what to do. We need to avoid the common tendency at the global level to divide civil society by continually drawing people living with HIV from organizations and, instead, empower people living with HIV to take power within the organizations that are actually running activities.
In my view, GIPA doesn’t mean that large organizations should make sure that on the side there is a small organization of people living with HIV who are occasionally consulted and asked what they think. GIPA means that people living with HIV should replace these large NGOs and actually become the principal agents for organizing the response. People living with HIV will never be able to do this alone, which is why it is important that we become united, including people with expertise. Ultimately, we should be focusing on uniting sero-concerned people. These include not only seroinfected but also sero-affected or sero-exposed people – all of whom have a personal reason to get involved in the response.
It’s not enough to have a designated seat at the table for any key population or person living with HIV. What matters is that that person also represents a group, not only themselves. With no movement behind them, this form of representation is just tokenism. ”
Read the entire post here: http://www.iasociety.org/Membership/IASONEVOICE/Stories/Getting-to-GIPA-20
Download the article here: http://www.iasociety.org/Web/WebContent/File/IASONEVOICE_gipa.pdf