CoPE (Continuous Patient Education) - 2001-2010

COPE project is a mechanism to fund the translation and adaptation of patient education materials. Several organisations are now translating patient materials into their own languages. This work has been possible through a patient education grant of 12000 Eur received by BMS in the end of 2008 and through a grant of 34,840 Eur for the period from July 2009 to July 2010.

Closed projects – from 2008 grant

- “Introduction to ART” from iBASE was translated, printed and distributed by HIV.LV into Latvian

- “Anti-HIV Drugs” from NAM was translated, printed and distributed by Sens Pozitiv into Romanian

- “Avoiding and Managing Side Effects” from iBASE was translated into Russian by the Social Partnership Development Fund

- “Adherence” and “Viral Load & CD4” from NAM were translated, printed and distributed into Albanian by the Albanian Association of PLHIV

Publications translated and printed – ongoing projects – from 2009 grant

Ongoing projects:

- “Avoiding and managing side effects” from iBASE was translated into Albanian and will be printed and distributed by the Albanian Organisation of PLHIV

- “HIV and Hepatitis C” from NAM was translated into Albainan and will be printed and distributed by the Kosovo Association for People Living with HIV KAPHA

- “Hepatitis C for people living with HIV” from iBASE will be translated into Latvian and printed and distributed by the HIV.LV association

- “Introduction to Combination Therapy” from iBASE will be translated into Estonian and printed and distributed by the Estonian Network of PLHIV

- “Introduction to Combination Therapy” from iBASE will be translated into Hungarian, printed and distributed by Cris Cziria

- “Introduction to Combination Therapy” from iBASE, “Adherence” and “Viral Load and CD4” from NAM will be translated into Turkish, printed and distributed by the Positive Living Association

- “Introduction to Combination Therapy” from iBASE will be translated into Slovakian, printed and distributed by ODYSEUS

A paper on patient education good practices will be included in the training manuals of the EATG as part of training materials. This will be developed in the first half of 2010 as support to the trainings.

Publications in waiting list – applications received for 2010

- “Changing treatment and drug resistance”, iBASE – Albanian Association of PLHIV to translate into Albanian

- “Guide to HIV, pregnancy and women´s health” from iBASE – League Against Aids into Slovakian

- “Guide to hepatitis C for people living with HIV: testing, coinfection, treatment and support” from iBASE into Slovakian

- “HIV and Sex” from NAM – Positive Living Association into Turkish

Other activities

The COPE project was presented at the Eastern Europe and Central Asia Aids Conference 2009 in Moscow in October.

Meetings with partners such as NAM and InfoAIDSNet were organised to discuss collaboration.

For more information about COPE please contact Ana Lucia Cardoso at analucia.cardoso@eatg.org.

Partners

Lead partner - EATG

Collaborating partners - NAM, iBASE, AIDS InfoNet

Summary

The COPE project is a mechanism for providing funding to local and national NGOs for the translation and publication of treatment brochures.
This project contributes to EATG’s priorities by:

• Raising awareness of treatment issues
• Increasing the public’s overall treatment knowledge
• Improving the quality of life of PLWHA

COPE Project Objectives are:

• To present an objective, patient-focused and user-friendly overview of relevant health and treatment information about specific subjects
• Produce quality brochures (in terms of content and design)
• Disseminate information to those most in need
• Establish partnerships with local and national NGOs

The COPE priorities for 2009 are:

• Enhance the reach, quality and visibility of COPE project through the establishment of a pro-active approach and
  quality standards
• Ensure that reliable patient information is adapted to the local needs
• Ensure best practices are applied in the process
• Reaching out to different national patient groups in Eastern Europe and present an objective, patient-focused and user friendly overview of relevant health and treatment information

Why

The ongoing development of HIV/AIDS treatment, new technologies and approaches improving the quality of life of PLWHA, have resulted in a growing need and demand for treatment information. In order to be able to exercise their rights, PLWHA must first be aware of them. Furthermore, when facing the pharmaceutical industry and the evolving market of HIV/AIDS drugs and medications, patients must have access to up-to-date, objective and comparative information.

What

• Adaptation and translation of publications into Eastern European languages
• Development of an online library
• Patient education good practices

Contact

EATG Secretariat - Ana Lúcia Cardoso